People living with dementia sharing their experiences
Andy talks about his experience of being diagnosed with dementia
Andy shares the impact dementia had on his occupation and tells us of a negative experience he had with a doctor
Andy tells us what he feels healthcare staff need to know about dementia. He discusses certain fears related to his experiences of healthcare.
Andy shares how a dementia diagnosis can overshadow other conditions and the difficulty being able to express needs.
Andy describes his hopes and fears about care homes
Andy speaks of the importance of age-related activities for younger people with dementia in care homes
Andy relays an experience of poor communication in a hospital setting
Andy shares the difficulty he had with regards to his partner not having legal rights to information about him
Andy speaks of his depression and fear post diagnosis
Andy speaks of his right to decline medication and the importance of trying other things before opting for sedative drugs
Hilary speaks of her experience and symptoms leading up to her diagnosis of dementia
Hilary shares her experience in the workplace while living with dementia
Hilary has concerns for the future, but mentions she has had good experiences of care homes through the work she does
Hilary shares her feelings of vulnerability in living with dementia
Hilary speaks of her positive hospital experience, although relays one very sad encounter with another patient
Hilary advises on practical tips with regards to personal care
Nigel describes being treated as ‘less of a person’ due to the presence of dementia
Nigel speaks of being seen through the prism of dementia
Nigel speaks of human rights and prejudice in disability and dementia
Nigel expresses his feelings on being referred to a psychiatrist on diagnosis, despite having no psychiatric symptoms
Nigel describes the notion of ‘prescribed disablement’ in dementia diagnosis
Nigel speaks of dementia as a disability and that there is hope for people to live a good life
Nigel speaks of stigma and the medical model
Nigel explains why people resist care and speaks of the importance of care fitting the needs of the person
Nigel says “If it’s not good enough for your mother, it’s not good enough for us”
Nigel describes how he would like to be treated if he were to ever live in a care home
Nigel relays his fears and concerns about how he might be treated if he were to live in a care home
Shelagh Robinson describes her experience of being diagnosed with dementia
Shelagh Robinson explains how, for her, it is harder to be a carer of a person with dementia than having dementia itself
Shelagh Robinson shares her feelings of being excluded following her diagnosis of dementia
Shelagh Robinson shares her opinion that sometimes human rights can be used in the wrong way
Shelagh Robinson speaks of the experience of incontinence
If you are living with dementia and are interested in sharing your experience, please get in touch.